Row 6341

Row ID: 6341 | Dataset Entry | Axioma AXP Content Repository

Content Data

This page contains data entry 6341 from the Axioma AXP content repository. The structured data below represents the complete record for this entry.

HI, my name is Joe Hall, and I have a rare brittle bone disorder called Osteogenesis Imperfecta (OI) which causes my bones to fracture easily, and be deformed.

OI is typically broken into 8 different types based on commonly found clinical features. I have one of the more severe called Type 3.

I estimate that I have had around 250 broken bones in my lifetime, though I don't really keep count. OI is caused by mutations to collagen molecules in the body. As such it can also effect other aspects of your body such as skin, teeth, hearing, and even your heart.

Most people that have OI experience the majority of their fractures before puberty when the body's bones are still developing.

My type of OI (Type 3) is considered severe/moderate which is why I have never walked and am around 3 feet tall. I also have low respiratory functions and I am partially deaf. I use an electric wheelchair to get around and hearing aids to hear.

I have always tried to live my life as fully as possible and attack each day like a very hungry honey badger!

This week is OI awareness week, which is why I wanted to come here and do this AMA!

You can learn more about OI by asking me questions in the comments, or from the Osteogenesis Imperfecta Foundation >> [http://www.OIF.org/](http://www.OIF.org/)

**At the moment I am raising money for OIF's biennial national conference and I'd LOVE your support:** [**https://myevent.com/OIFWalknWheel2024/participants/joehall**](https://myevent.com/OIFWalknWheel2024/participants/joehall) **Any little bit helps.**

Over the next couple of days I'll try my best to answer as many questions as I can.

**--Verification info for mods and cynics--**

I have done this same type of AMA before here:

[https://www.reddit.com/r/IAmA/comments/13d918d/i\_have\_had\_around\_250\_broken\_bones\_in\_my\_life\_due/](https://www.reddit.com/r/IAmA/comments/13d918d/i_have_had_around_250_broken_bones_in_my_life_due/)

And here:

[https://www.reddit.com/r/AMA/comments/n64z8j/i\_have\_had\_approximately\_250\_broken\_bones\_so\_far/](https://www.reddit.com/r/AMA/comments/n64z8j/i_have_had_approximately_250_broken_bones_so_far/)

and here:

[https://www.reddit.com/r/IAmA/comments/90q6yx/i\_am\_the\_real\_mr\_glass\_i\_have\_brittle\_bone/](https://www.reddit.com/r/IAmA/comments/90q6yx/i_am_the_real_mr_glass_i_have_brittle_bone/)

and here: [https://www.reddit.com/r/AMA/comments/4hhtzg/i\_have\_had\_around\_250\_fractures\_broken\_bones\_in/](https://www.reddit.com/r/AMA/comments/4hhtzg/i_have_had_around_250_fractures_broken_bones_in/)

Here are some pics of my face: https://imgur.com/a/sjkltze

Field	Value
text	HI, my name is Joe Hall, and I have a rare brittle bone disorder called Osteogenesis Imperfecta (OI) which causes my bones to fracture easily, and be deformed. OI is typically broken into 8 different types based on commonly found clinical features. I have one of the more severe called Type 3. I estimate that I have had around 250 broken bones in my lifetime, though I don't really keep count. OI is caused by mutations to collagen molecules in the body. As such it can also effect other aspects o…
label	r/iama
dataType	post
communityName	r/IAmA
datetime	2024-05-09
username_encoded	Z0FBQUFBQm5LakwySjZtTW8xMFgya1FJb3p2VURRRjJIMXlucWdVci1yWEx5bnFwakdBcHlzR0hfQmQ2QTZvMUhtVDkwREdBcEpvYnFUTmhaZmxFbUszcW9Ed0RUcVRFZlE9PQ==
url_encoded	Z0FBQUFBQm5Lak9HcmdqS3YzdTVKVDdaUV9TNS1tQUYwT2hHY1pWOFBxMEhDTHlhSnduMjBFeUVJNVN2WmdQS0Zkck44c0trbWZFU2laa1N0NTRxNXZoaGhjbzh6bkYtR01HY2RLRWxjMThkTGxGT1Z0TEREMU1QYVBQc2tHdERxaEozWFVNdG96RXRWOTJ3SmVXMTlHcW1SNVJRWnk3WmVSZHhfNU4yTElWRUFTT0N6c2piR2xSWmkxdXNzbjEzR3BZdDE0SGlzZFR6

Raw Record

{
  "text": "HI, my name is Joe Hall, and I have a rare brittle bone disorder called Osteogenesis Imperfecta (OI) which causes my bones to fracture easily, and be deformed.\n\nOI is typically broken into 8 different types based on commonly found clinical features. I have one of the more severe called Type 3.\n\nI estimate that I have had around 250 broken bones in my lifetime, though I don't really keep count. OI is caused by mutations to collagen molecules in the body. As such it can also effect other aspects of your body such as skin, teeth, hearing, and even your heart.\n\nMost people that have OI experience the majority of their fractures before puberty when the body's bones are still developing.\n\nMy type of OI (Type 3) is considered severe/moderate which is why I have never walked and am around 3 feet tall. I also have low respiratory functions and I am partially deaf. I use an electric wheelchair to get around and hearing aids to hear.\n\nI have always tried to live my life as fully as possible and attack each day like a very hungry honey badger!\n\nThis week is OI awareness week, which is why I wanted to come here and do this AMA!\n\nYou can learn more about OI by asking me questions in the comments, or from the Osteogenesis Imperfecta Foundation >> [http://www.OIF.org/](http://www.OIF.org/)\n\n**At the moment I am raising money for OIF's biennial national conference and I'd LOVE your support:** [**https://myevent.com/OIFWalknWheel2024/participants/joehall**](https://myevent.com/OIFWalknWheel2024/participants/joehall) **Any little bit helps.**\n\nOver the next couple of days I'll try my best to answer as many questions as I can.\n\n**--Verification info for mods and cynics--**\n\nI have done this same type of AMA before here:\n\n[https://www.reddit.com/r/IAmA/comments/13d918d/i\\_have\\_had\\_around\\_250\\_broken\\_bones\\_in\\_my\\_life\\_due/](https://www.reddit.com/r/IAmA/comments/13d918d/i_have_had_around_250_broken_bones_in_my_life_due/)\n\nAnd here:\n\n[https://www.reddit.com/r/AMA/comments/n64z8j/i\\_have\\_had\\_approximately\\_250\\_broken\\_bones\\_so\\_far/](https://www.reddit.com/r/AMA/comments/n64z8j/i_have_had_approximately_250_broken_bones_so_far/)\n\nand here:\n\n[https://www.reddit.com/r/IAmA/comments/90q6yx/i\\_am\\_the\\_real\\_mr\\_glass\\_i\\_have\\_brittle\\_bone/](https://www.reddit.com/r/IAmA/comments/90q6yx/i_am_the_real_mr_glass_i_have_brittle_bone/)\n\nand here: [https://www.reddit.com/r/AMA/comments/4hhtzg/i\\_have\\_had\\_around\\_250\\_fractures\\_broken\\_bones\\_in/](https://www.reddit.com/r/AMA/comments/4hhtzg/i_have_had_around_250_fractures_broken_bones_in/)\n\nHere are some pics of my face: https://imgur.com/a/sjkltze ",
  "label": "r/iama",
  "dataType": "post",
  "communityName": "r/IAmA",
  "datetime": "2024-05-09",
  "username_encoded": "Z0FBQUFBQm5LakwySjZtTW8xMFgya1FJb3p2VURRRjJIMXlucWdVci1yWEx5bnFwakdBcHlzR0hfQmQ2QTZvMUhtVDkwREdBcEpvYnFUTmhaZmxFbUszcW9Ed0RUcVRFZlE9PQ==",
  "url_encoded": "Z0FBQUFBQm5Lak9HcmdqS3YzdTVKVDdaUV9TNS1tQUYwT2hHY1pWOFBxMEhDTHlhSnduMjBFeUVJNVN2WmdQS0Zkck44c0trbWZFU2laa1N0NTRxNXZoaGhjbzh6bkYtR01HY2RLRWxjMThkTGxGT1Z0TEREMU1QYVBQc2tHdERxaEozWFVNdG96RXRWOTJ3SmVXMTlHcW1SNVJRWnk3WmVSZHhfNU4yTElWRUFTT0N6c2piR2xSWmkxdXNzbjEzR3BZdDE0SGlzZFR6"
}

Explore Dataset Explore Row

Entry Information

Entry ID: 6341
Repository: Axioma AXP
Dataset: arrmlet/reddit_dataset_36
Total Entries: 100,000