Row 6143

Row ID: 6143 | Dataset Entry | Axioma AXP Content Repository

Content Data

This page contains data entry 6143 from the Axioma AXP content repository. The structured data below represents the complete record for this entry.

Hello! I'm Ryan Prior, a journalist who worked for six years at CNN, including covering health and science as a features writer during the Covid-19 pandemic. I left to write my book "The Long Haul." You can find the book through [MIT Press here](https://mitpress.mit.edu/9780262548151/the-long-haul/). I became a Fellow and Journalist-in-Residence at the Century Foundation -- a think tank in Washington, DC -- where I researched public policy ideas to inform an all-of-government response to Long Covid. At Century, I also began writing a column called "Patient Revolution" for Psychology Today.

If there's one north star that informs my work it's that the authentic power of lived experience can fuse with data-driven scholarship in nearly any field to inform the highest quality policy response. In my own life, that's meant a journey of being diagnosed with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), writing about it for USA Today, and eventually helping co-found the [ME Action Network](https://www.meaction.net), a non-profit that is igniting a global campaign for health equity for those with chronic illness. Those experiences led me to become a Stanford Medicine X ePatient, meeting dozens of brilliant patient advocates and innovators from around the world. So when millions got sick with Covid -- and stayed sick -- I knew I had more than a decade's head start to write this book, and weave together personal experience, philosophical reflection, and up-to-the-minute science reporting.

[Proof.](https://postimg.cc/jLkFy0Yn) I'd love to answer your questions about:

- Patient-centered startups working to solve Long Covid - The citizen movement toward the $10 billion Long Covid Moonshot, now championed by Senator Bernie Sanders - Working with the US Senate and patient advocacy groups to create an NIH Office of Infection-Associated Chronic Illness Research - How to talk to your doctor about Long Covid, POTS, mast cell activation syndrome, Lyme disease, and other complex conditions - What it was like to work on CNN's political team during the 2016 election and on the science team during the pandemic

FieldValue
text Hello! I'm Ryan Prior, a journalist who worked for six years at CNN, including covering health and science as a features writer during the Covid-19 pandemic. I left to write my book "The Long Haul." You can find the book through [MIT Press here](https://mitpress.mit.edu/9780262548151/the-long-haul/). I became a Fellow and Journalist-in-Residence at the Century Foundation -- a think tank in Washington, DC -- where I researched public policy ideas to inform an all-of-government response to Long Co…
label r/iama
dataType post
communityName r/IAmA
datetime 2024-05-07
username_encoded Z0FBQUFBQm5LakwyVm5Ta2NKd0ZSakctVHlOUHlEY2d0STNuLXVKbUJKQ051VXlIQkdvVGo2RE5uUGwzeS16RFhZVlo4cjJYcW1Yd1ZVM2xIQWFvTlg0ZzJRUzQtY2xQU2c9PQ==
url_encoded Z0FBQUFBQm5Lak9HeTJfNm54dHJ2VHg2MmNMNm9RdU1RNWdPSUVVSUNIWGllYjhHcUFkUFFaZzdrWHlyX0o0aFNwWUNlSmIybUlLTXlxYzQzUkY1TlVhNjBUZFBzR3diTi0yMUcxTzBjYXBDT0NQNnRTWFRjWXYtWHVidjQ2V040ZlJFLUhvTS1Mc016aWlmQktfM1RKUHhyamZSV1RuMDRVT2ZZRDBsWFkxQzktZU5VMFFFUElzN3BybnlueTJXemNMQ0tVSG5yZ09w

Raw Record

{
  "text": "Hello! I'm Ryan Prior, a journalist who worked for six years at CNN, including covering health and science as a features writer during the Covid-19 pandemic. I left to write my book \"The Long Haul.\" You can find the book through [MIT Press here](https://mitpress.mit.edu/9780262548151/the-long-haul/). I became a Fellow and Journalist-in-Residence at the Century Foundation -- a think tank in Washington, DC -- where I researched public policy ideas to inform an all-of-government response to Long Covid. At Century, I also began writing a column called \"Patient Revolution\" for Psychology Today.\n\nIf there's one north star that informs my work it's that the authentic power of lived experience can fuse with data-driven scholarship in nearly any field to inform the highest quality policy response. In my own life, that's meant a journey of being diagnosed with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), writing about it for USA Today, and eventually helping co-found the [ME Action Network](https://www.meaction.net), a non-profit that is igniting a global campaign for health equity for those with chronic illness. Those experiences led me to become a Stanford Medicine X ePatient, meeting dozens of brilliant patient advocates and innovators from around the world. So when millions got sick with Covid -- and stayed sick -- I knew I had more than a decade's head start to write this book, and weave together personal experience, philosophical reflection, and up-to-the-minute science reporting.\n\n[Proof.](https://postimg.cc/jLkFy0Yn) I'd love to answer your questions about:\n\n- Patient-centered startups working to solve Long Covid  \n- The citizen movement toward the $10 billion Long Covid Moonshot, now championed by Senator Bernie Sanders  \n- Working with the US Senate and patient advocacy groups to create an NIH Office of Infection-Associated Chronic Illness Research  \n- How to talk to your doctor about Long Covid, POTS, mast cell activation syndrome, Lyme disease, and other complex conditions  \n- What it was like to work on CNN's political team during the 2016 election and on the science team during the pandemic",
  "label": "r/iama",
  "dataType": "post",
  "communityName": "r/IAmA",
  "datetime": "2024-05-07",
  "username_encoded": "Z0FBQUFBQm5LakwyVm5Ta2NKd0ZSakctVHlOUHlEY2d0STNuLXVKbUJKQ051VXlIQkdvVGo2RE5uUGwzeS16RFhZVlo4cjJYcW1Yd1ZVM2xIQWFvTlg0ZzJRUzQtY2xQU2c9PQ==",
  "url_encoded": "Z0FBQUFBQm5Lak9HeTJfNm54dHJ2VHg2MmNMNm9RdU1RNWdPSUVVSUNIWGllYjhHcUFkUFFaZzdrWHlyX0o0aFNwWUNlSmIybUlLTXlxYzQzUkY1TlVhNjBUZFBzR3diTi0yMUcxTzBjYXBDT0NQNnRTWFRjWXYtWHVidjQ2V040ZlJFLUhvTS1Mc016aWlmQktfM1RKUHhyamZSV1RuMDRVT2ZZRDBsWFkxQzktZU5VMFFFUElzN3BybnlueTJXemNMQ0tVSG5yZ09w"
}
Explore Dataset Explore Row

Entry Information